About HRC3
Objectives
-
Conduct basic science, translational, clinical and health services research to understand heterotaxy pathophysiology, phenotype and clinical outcomes.
-
Foster relationships among various subspecialty clinicians carding for patients with heterotaxy.
-
Offer support and guidance for the development of local heterotaxy clinical centers of excellence
-
Develop local and national patient registries to provide a platform for clinical studies.
-
Educate patients, families and peers regarding diagnostic tests, medical surveillance and treatments for heterotaxy.
-
Standardize language and definitions across various medical specialties.
-
Organize international scientific conferences to share research and clinical care progress.
-
Facilitate patient participation in industry-sponsored clinical trials.
-
Spread awareness of health-care disparities.
-
Foster an environment valuing diversity, equity and inclusion among collaborators.
HRC3 Centers
Within the next year, the HRC3 will develop clinical care guidelines and tools to help hospitals around
the country build comprehensive clinical programs to offer regional expertise in heterotaxy for every
patient in the country.
HRC3 Members
Thomas G. Saba, MD
Pediatric pulmonology
University of Michigan Medical School
David Schidlow, MD, MMus
Pediatric cardiology
Director, Heterotaxy Program
Boston Children’s Hospital
Caitlin O’Connell, DNP
Heterotaxy program,
Boston Children’s Hospital
Necia Sabin
Heterotaxy Connection
Stephanie M. Ware, MD PhD
Medical and molecular genetics
Indiana University School of Medicine
Emily Bucholz, MD MPH PhD
Pediatric cardiology,
University of Colorado Anschutz Medical Campus
Elle Geddes, MD
Medical and molecular genetics
Indiana University School of Medicine
Kathryn Chatfield, MD PhD
Cardiac genetics
University of Colorado Anschutz Medical Campus
Joshua Meisner, MD PhD
Pediatric cardiology
University of Michigan Medical School
Christopher R. Broda, MD
Adult congenital heart program
Baylor College of Medicine
Andrea S. Garrod, MD
Pediatric pulmonology
University of Virginia School of Medicine
Kenan Haver, MD
Pediatric pulmonology
Boston Children’s Hospital
Adam Shapiro, MD
Pediatric respirology
McGill University School of Medicine
Steve Spurgin, MD
Pediatric cardiology
UT Southwestern Medical Center
HRC3 Leadership: Executive Directors
Thomas G. Saba, MD
Pediatric pulmonology
Associate Professor, Department of Pediatrics, Pulmonary Division, University of Michigan Medical School
David Schidlow, MD, MMus
Pediatric and Fetal Cardiology | Cardiac Imaging
Director, Heterotaxy Program
Boston Children's Hospital
Assistant Professor of Pediatrics, Harvard Medical School
Necia Sabin
Executive Director
Heterotaxy Connection