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Join us for Facing Heterotaxy Together, the premier conference bringing together families, clinicians, and researchers to advance understanding, support, and treatment of Heterotaxy. In partnership with Heterotaxy Connection and the Benderson Family Heart Center at Boston Children's Hospital, for the first time ever we are combining our scientific and family conferences in one event, offering dedicated programming in two tracks.
Clinician Track: Cutting-edge research, clinical advancements, networking opportunities, and collaborative discussions among medical professionals.
Family Track: Support, education, and community-building sessions for individuals and families affected by Heterotaxy. Families interested in clinical programming will be welcome to attend general sessions.
October 9-12, 2025
Early bird pricing is available.
This conference will foster meaningful connections between those living with Heterotaxy and the experts working to improve care and outcomes.
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Clinicians in training can register for free. CME's will be available through Boston Children's Hospital.
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Stay tuned for speaker announcements and agenda details.
If you are interested in presenting a poster at the conference, please contact HRC3@heterotaxy.org
At the Facing Heterotaxy Together Scientific Conference, in September 2024, clinical and research experts in various subspecialty fields from across the country presented detailed reviews of clinical manifestations, management recommendations, and research in the field of heterotaxy.
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Full recordings are available to view and share.
Conference Chairs
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Thomas G. Saba, MD, Pediatric Pulmonology, C.S. Mott Children’s Hospital, University of Michigan Medical School
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David N. Schidlow, MD, MMus, Pediatric Cardiology, Director – Heterotaxy Program, Boston Children’s Hospital, Harvard Medical School
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Stephanie M. Ware, MD PhD, Department of Medical and Molecular Genetics, Director of Cardiovascular Genetics, Indiana University School of Medicine, and Riley Children’s Hospital at Indiana University Health
Objectives
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Establish a united approach to heterotaxy care and research
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Gain a better understanding of the diverse clinical features of heterotaxy
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Facilitate national networks for clinical, basic science, translational and health services research
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Build tools and expertise for local heterotaxy program development
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Create a foundation for a future national registry
Speakers (listed alphabetically)
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Christopher R. Broda, MD, Adult Congenital Heart Disease Program, Baylor College of Medicine
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Emily Bucholz, MD MPH PhD, Pediatric Cardiology, University of Colorado Anschutz Medical Campus
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Kathryn Chatfield, MD PhD, Cardiac Genetics, University of Colorado Anschutz Medical Campus
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Andrea S. Garrod, MD, Pediatric Pulmonology, University of Virginia School of Medicine
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Elle Geddes, MD, Medical and Molecular Genetics, Indiana University School of Medicine
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Kenan Haver, MD, Pediatric Pulmonology, Boston Children’s Hospital
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David Hoganson, MD, Cardiac Surgery, Boston Children's Hospital
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Gerald Marx, MD, Pediatric Cardiology, Boston Children’s Hospital
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Cecilia W. Lo, PhD, Developmental Biology, University of Pittsburgh
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Douglas R. McDonald, MD PhD, Pediatric Immunology, Boston Children’s Hospital
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Caitlin O’Connell, DNP, Boston Children’s Hospital
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David Schidlow, MD MMUs, Pediatric Cardiology, Boston Children’s Hospital
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Adam Shapiro, MD, Pediatric Respirology, McGill University School of Medicine
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Steven Spurgin, MD, Pediatric Cardiology, Children's Health - Dallas, UT Southwestern Medical Center
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Michaela S. Tracy, MD, Pediatric Gastroenterology, Hepatology and Nutrition, Boston Children’s Hospital
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Stephanie Ware, MD PhD, Medical and Molecular Genetics, Indiana University School of Medicine