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At the Facing Heterotaxy Together Conference, clinical and research experts in various subspecialty fields from across the country will present detailed reviews of clinical manifestations, management recommendations, and research in the field of heterotaxy.

Date and Time

  • Wednesday, September 11th, 10:00am to 1:00pm Eastern

  • Thursday, September 12th, 10:00am to 1:00pm Eastern

Conference Chairs

  • Thomas G. Saba, MD, Pediatric Pulmonology, C.S. Mott Children’s Hospital, University of Michigan Medical School

  • David N. Schidlow, MD, MMus, Pediatric Cardiology, Director – Heterotaxy Program, Boston Children’s Hospital, Harvard Medical School

  • Stephanie M. Ware, MD PhD, Medical and Molecular Genetics, Riley Children’s Hospital, Pediatric Indiana University School of Medicine

Objectives

  • Establish a united approach to heterotaxy care and research

  • Gain a better understanding of the diverse clinical features of heterotaxy

  • Facilitate national networks for clinical, basic science, translational and health services research

  • Build tools and expertise for local heterotaxy program development

  • Create a foundation for a future national registry

Speakers (listed alphabetically)

  • Christopher R. Broda, MD, Adult Congenital Heart Disease Program, Baylor College of Medicine

  • Emily Bucholz, MD MPH PhD, Pediatric Cardiology, University of Colorado Anschutz Medical Campus 

  • Kathryn Chatfield, MD PhD, Cardiac Genetics, University of Colorado Anschutz Medical Campus 

  • Andrea S. Garrod, MD, Pediatric Pulmonology, University of Virginia School of Medicine

  • Elle Geddes, MD, Medical and Molecular Genetics, Indiana University School of Medicine

  • Kenan Haver, MD, Pediatric Pulmonology, Boston Children’s Hospital

  • David Hoganson, MD, Cardiac Surgery, Boston Children's Hospital

  • Gerald Marx, MD, Pediatric Cardiology, Boston Children’s Hospital

  • Cecilia W. Lo, PhD, Developmental Biology, University of Pittsburgh

  • Douglas R. McDonald, MD PhD, Pediatric Immunology, Boston Children’s Hospital

  • Caitlin O’Connell, DNP, Boston Children’s Hospital 

  • David Schidlow, MD MMUs, Pediatric Cardiology, Boston Children’s Hospital

  • Adam Shapiro, MD, Pediatric Respirology, McGill University School of Medicine 

  • Steven Spurgin, MD, Pediatric Cardiology, UT Southwestern Medical Center

  • Michaela S. Tracy, MD, Pediatric Gastroenterology, Hepatology and Nutrition, Boston Children’s Hospital

  • Stephanie Ware, MD PhD, Medical and Molecular Genetics, Indiana University School of Medicine

Itinerary

*Coming Soon*

Registration

Registration is free. Please register here.

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