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For Healthcare Providers

Clinical Care Guidelines

A multi-disciplinary, comprehensive approach to management of children with heterotaxy (Saba, T.G., Geddes, G.C., Ware, S.M. et al.) was published in 2022 and contains the most complete, up-to-date guidelines for diagnosis and management of heterotaxy.

Join the Network

For physicians, scientists and care providers interested in joining the HRC3 network, building local clinical programs, participating in research, and helping to improve the care for patients living with heterotaxy, please click here.

For patients and families with medical questions, please visit Heterotaxy Connection, our partner patient advocacy group, for guidance on how to find heterotaxy experts.

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